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Resources for
families and children
Greater Boston Sickle Cell Disease Association
Purpose: Offers comprehensive support services to patients with sickle cell disease and their families, and educates the general public on matters pertaining to sickle cell disease and sickle cell trait.
Location: 1542 Tremont Street, Roxbury
Contact: Rev. Ronald Stephenson, 617-427-4100
Web address: http://www.cscsginc.org
Sickle Sisters
Purpose: Offers support and information to teenage girls who have sickle cell disease
Location: Boston Floating Hospital for Children (Pediatric Hematology and Oncology), 750 Washington Street, Boston
Contact: Jeanne Hampton, 617-636-5535
SickleCellKids.org
Purpose: A fun, educational Web site for kids with sickle cell disease, their families and friends
Web address: http://www.sicklecellkids.org
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